HUMA 3300: Medical Humanities

This textbook brings the humanities to students in order to evoke the humanity of students. It helps to form individuals who take charge of their own minds, who are free from narrow and unreflective forms of thought, and who act compassionately in their public and professional worlds. Using concepts and methods of the humanities, the book addresses undergraduate and premed students, medical students, and students in other health professions, as well as physicians and other healthcare practitioners. It encourages them to consider the ethical and existential issues related to the experience of disease, care of the dying, health policy, religion and health, and medical technology. Case studies, images, questions for discussion, and role-playing exercises help readers to engage in the practical, interpretive, and analytical aspects of the material, developing skills for critical thinking as well as compassionate care.

Over the past forty years, the health humanities, previously called the medical humanities, has emerged as one of the most exciting fields for interdisciplinary scholarship, advancing humanistic inquiry into bioethics, human rights, health care, and the uses of technology. It has also helped inspire medical practitioners to engage in deeper reflection about the human elements of their practice. In Health Humanities Reader, editors Therese Jones, Delese Wear, and Lester D. Friedman have assembled fifty-four leading scholars, educators, artists, and clinicians to survey the rich body of work that has already emerged from the field--and to imagine fresh approaches to the health humanities in these original essays. The collection's contributors reflect the extraordinary diversity of the field, including scholars from the disciplines of disability studies, history, literature, nursing, religion, narrative medicine, philosophy, bioethics, medicine, and the social sciences.  With warmth and humor, critical acumen and ethical insight, Health Humanities Reader truly humanizes the field of medicine. Its accessible language and broad scope offers something for everyone from the experienced medical professional to a reader interested in health and illness.

The original 1818 text of Mary Shelley's classic novel, with annotations and essays highlighting its scientific, ethical, and cautionary aspects. Mary Shelley's Frankenstein has endured in the popular imagination for two hundred years. Begun as a ghost story by an intellectually and socially precocious eighteen-year-old author during a cold and rainy summer on the shores of Lake Geneva, the dramatic tale of Victor Frankenstein and his stitched-together creature can be read as the ultimate parable of scientific hubris. Victor, "the modern Prometheus," tried to do what he perhaps should have left to Nature: create life. Although the novel is most often discussed in literary-historical terms--as a seminal example of romanticism or as a groundbreaking early work of science fiction--Mary Shelley was keenly aware of contemporary scientific developments and incorporated them into her story. In our era of synthetic biology, artificial intelligence, robotics, and climate engineering, this edition of Frankenstein will resonate forcefully for readers with a background or interest in science and engineering, and anyone intrigued by the fundamental questions of creativity and responsibility. This edition of Frankenstein pairs the original 1818 version of the manuscript--meticulously line-edited and amended by Charles E. Robinson, one of the world's preeminent authorities on the text--with annotations and essays by leading scholars exploring the social and ethical aspects of scientific creativity raised by this remarkable story. The result is a unique and accessible edition of one of the most thought-provoking and influential novels ever written. Essays by Elizabeth Bear, Cory Doctorow, Heather E. Douglas, Josephine Johnston, Kate MacCord, Jane Maienschein, Anne K. Mellor, Alfred Nordmann

 Winner of both the Hugo and Nebula Awards, the powerful, classic story about a man who receives an operation that turns him into a genius...and introduces him to heartache.   Charlie Gordon is about to embark upon an unprecedented journey. Born with an unusually low IQ, he has been chosen as the perfect subject for an experimental surgery that researchers hope will increase his intelligence-a procedure that has already been highly successful when tested on a lab mouse named Algernon. As the treatment takes effect, Charlie's intelligence expands until it surpasses that of the doctors who engineered his metamorphosis. The experiment appears to be a scientific breakthrough of paramount importance, until Algernon suddenly deteriorates. Will the same happen to Charlie?  

"This book is a testament to the extraordinary depth, powers, and resiliency of children's spirits." --Marion Wright Edelman, president, Children's Defense Fund IfI Get to Fiveis a one-of-a-kind book by a one-of-a-kind human being. The medical world knows him as Fred Epstein, M.D., the neurosurgeon who pioneered life-saving procedures for previously inoperable tumors in children. His patients and their families know him simply as Dr. Fred, the "miracle man" who has extended them both a healing hand and an open heart. Throughout his career Epstein's young patients have been his most important teachers and trusted guides. They are children who--often by sheer force of will--have refused to relinquish life and all its gifts. In this inspiring book, these children teach us the lessons we all need to learn in order to live life to the fullest--lessons about seizing the moment and facing our deepest fears, about embracing the joy and wonder of everyday life. Most of all, they teach lessons about uncommon courage--the courage to do what's hardest, to believe in what we don't understand, to love without boundaries. If I Get to Fivetakes us inside a world unlike any other, from the high-stakes, high-tech operating room where life and death are separated by a heartbeat to the sickrooms and recovery rooms where parents discover the limits and power of their faith. But most compelling of all is the journey inside the hearts, minds, and souls of the wisest children you will ever encounter. No one who reads this remarkable book will ever look at children--or adversity--in the same way.

#1 NEW YORK TIMES BESTSELLER * "The story of modern medicine and bioethics--and, indeed, race relations--is refracted beautifully, and movingly."--Entertainment Weekly NOW A MAJOR MOTION PICTURE FROM HBO® STARRING OPRAH WINFREY AND ROSE BYRNE * ONE OF THE "MOST INFLUENTIAL" (CNN), "DEFINING" (LITHUB), AND "BEST" (THE PHILADELPHIA INQUIRER) BOOKS OF THE DECADE * ONE OF ESSENCE'S 50 MOST IMPACTFUL BLACK BOOKS OF THE PAST 50 YEARS * WINNER OF THE CHICAGO TRIBUNE HEARTLAND PRIZE FOR NONFICTION NAMED ONE OF THE BEST BOOKS OF THE YEAR BY The New York Times Book Review * Entertainment Weekly * O: The Oprah Magazine * NPR * Financial Times * New York * Independent (U.K.) * Times (U.K.) * Publishers Weekly * Library Journal * Kirkus Reviews * Booklist * Globe and Mail Her name was Henrietta Lacks, but scientists know her as HeLa. She was a poor Southern tobacco farmer who worked the same land as her slave ancestors, yet her cells--taken without her knowledge--became one of the most important tools in medicine: The first "immortal" human cells grown in culture, which are still alive today, though she has been dead for more than sixty years. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer, viruses, and the atom bomb's effects; helped lead to important advances like in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions.  Yet Henrietta Lacks remains virtually unknown, buried in an unmarked grave. Henrietta's family did not learn of her "immortality" until more than twenty years after her death, when scientists investigating HeLa began using her husband and children in research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the profits. As Rebecca Skloot so brilliantly shows, the story of the Lacks family--past and present--is inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of.  Over the decade it took to uncover this story, Rebecca became enmeshed in the lives of the Lacks family--especially Henrietta's daughter Deborah. Deborah was consumed with questions: Had scientists cloned her mother? Had they killed her to harvest her cells? And if her mother was so important to medicine, why couldn't her children afford health insurance?  Intimate in feeling, astonishing in scope, and impossible to put down, The Immortal Life of Henrietta Lacks captures the beauty and drama of scientific discovery, as well as its human consequences.

#1 NEW YORK TIMES BESTSELLER * PULITZER PRIZE FINALIST * This inspiring, exquisitely observed memoir finds hope and beauty in the face of insurmountable odds as an idealistic young neurosurgeon attempts to answer the question What makes a life worth living? NAMED ONE OF PASTE'S BEST MEMOIRS OF THE DECADE * NAMED ONE OF THE BEST BOOKS OF THE YEAR BY The New York Times Book Review * People * NPR * The Washington Post * Slate * Harper's Bazaar * Time Out New York * Publishers Weekly * BookPage Finalist for the PEN Center USA Literary Award in Creative Nonfiction and the Books for a Better Life Award in Inspirational Memoir At the age of thirty-six, on the verge of completing a decade's worth of training as a neurosurgeon, Paul Kalanithi was diagnosed with stage IV lung cancer. One day he was a doctor treating the dying, and the next he was a patient struggling to live. And just like that, the future he and his wife had imagined evaporated. When Breath Becomes Air chronicles Kalanithi's transformation from a naïve medical student "possessed," as he wrote, "by the question of what, given that all organisms die, makes a virtuous and meaningful life" into a neurosurgeon at Stanford working in the brain, the most critical place for human identity, and finally into a patient and new father confronting his own mortality. What makes life worth living in the face of death? What do you do when the future, no longer a ladder toward your goals in life, flattens out into a perpetual present? What does it mean to have a child, to nurture a new life as another fades away? These are some of the questions Kalanithi wrestles with in this profoundly moving, exquisitely observed memoir. Paul Kalanithi died in March 2015, while working on this book, yet his words live on as a guide and a gift to us all. "I began to realize that coming face to face with my own mortality, in a sense, had changed nothing and everything," he wrote. "Seven words from Samuel Beckett began to repeat in my head: 'I can't go on. I'll go on.'" When Breath Becomes Air is an unforgettable, life-affirming reflection on the challenge of facing death and on the relationship between doctor and patient, from a brilliant writer who became both.

Winner of the Pulitzer Prize and a documentary from Ken Burns on PBS, this New York Times bestseller is "an extraordinary achievement" (The New Yorker)--a magnificent, profoundly humane "biography" of cancer--from its first documented appearances thousands of years ago through the epic battles in the twentieth century to cure, control, and conquer it to a radical new understanding of its essence. Physician, researcher, and award-winning science writer, Siddhartha Mukherjee examines cancer with a cellular biologist's precision, a historian's perspective, and a biographer's passion. The result is an astonishingly lucid and eloquent chronicle of a disease humans have lived with--and perished from--for more than five thousand years. The story of cancer is a story of human ingenuity, resilience, and perseverance, but also of hubris, paternalism, and misperception. Mukherjee recounts centuries of discoveries, setbacks, victories, and deaths, told through the eyes of his predecessors and peers, training their wits against an infinitely resourceful adversary that, just three decades ago, was thought to be easily vanquished in an all-out "war against cancer." The book reads like a literary thriller with cancer as the protagonist. Riveting, urgent, and surprising, The Emperor of All Maladies provides a fascinating glimpse into the future of cancer treatments. It is an illuminating book that provides hope and clarity to those seeking to demystify cancer.

If you are facing a cancer-related challenge or loss, people tell you to have hope. How are you supposed to find that hope? What should you hope for? In this groundbreaking book, Wendy S. Harpham, MD, shares her hard-earned wisdom about finding and nourishing the best hopes for you. The innovative format of illustrated aphorisms with succinct supporting text make the ideas remarkably accessible and memorable. According to New York Times health columnist Jane Brody, "Healing Hope -- inspired and inspiring words to live by." From Dr. Harpham's perspective as a longtime cancer survivor and leader in survivorship, she offers powerful insights and practical tips that encourage readers to think about hope in new ways. Patients and families are guided to specific hopes that help them obtain sound knowledge and take effective action. Since proper action increases patients’ chance—their hope—of the best outcome, Healing Hope helps patients get good care and live as fully as possible today, tomorrow and every day.

This is a revised and expanded edtion of a classic in palliative medicine, originally published in 1991. With three added chapters and a new preface summarizing our progress in the area of pain management, this is a must-hve for those in palliative medicine and hospice care.The obligation of physicians to relieve human suffering stretches back into antiquity. But what exactly, is suffering? One patient with metastic cancer of the stomach, from which he knew he would shortly die, said he was not suffering. Another, someone who had been operated on for a mior problem--inlittle pain and not seemingly distressed--said that even coming into the hospital had been a source of pain and not suffering. With such varied responses to the problem of suffering, inevitable questions arise. Is it the doctor's responsibility to treat the disease or the patient? And what is therelationship between suffering and the goals of medicine?According to Dr. Eric Cassell, these are crucial questions, but unfortunately, have remained only queries void of adequate solutions. It is time for the sick person, Cassell believes, to be not merely an important concern for physicians but the central focus of medicine. With this in mind, Cassellargues for an understanding of what changes should be made in order to successfully treat the sick while alleviating suffering, and how to actually go about making these changes with the methods and training techniques firmly rooted in the doctor's relationship with the patient.Dr. Cassell offers an incisive critique of the approach of modern medicine. Drawing on a number of evocative patient narratives, he writes that the goal of medicine must be to treat an individual's suffering, and not just the disease. In addition, Cassell's thoughtful and incisive argument willappeal to psychologists and psychiatrists interested in the nature of pain and suffering.

Winner of the National Book Critics Circle Award for NonfictionWhen three-month-old Lia Lee Arrived at the county hospital emergency room in Merced, California, a chain of events was set in motion from which neither she nor her parents nor her doctors would ever recover. Lia's parents, Foua and Nao Kao, were part of a large Hmong community in Merced, refugees from the CIA-run "Quiet War" in Laos. The Hmong, traditionally a close-knit and fiercely people, have been less amenable to assimilation than most immigrants, adhering steadfastly to the rituals and beliefs of their ancestors. Lia's pediatricians, Neil Ernst and his wife, Peggy Philip, cleaved just as strongly to another tradition: that of Western medicine. When Lia Lee Entered the American medical system, diagnosed as an epileptic, her story became a tragic case history of cultural miscommunication.Parents and doctors both wanted the best for Lia, but their ideas about the causes of her illness and its treatment could hardly have been more different. The Hmong see illness aand healing as spiritual matters linked to virtually everything in the universe, while medical community marks a division between body and soul, and concerns itself almost exclusively with the former. Lia's doctors ascribed her seizures to the misfiring of her cerebral neurons; her parents called her illness, qaug dab peg - the spirit catches you and you fall down - and ascribed it to the wandering of her soul. The doctors prescribed anticonvulsants; her parents preferred animal sacrifices.

#1 New York Times Bestseller In Being Mortal, bestselling author Atul Gawande tackles the hardest challenge of his profession: how medicine can not only improve life but also the process of its ending Medicine has triumphed in modern times, transforming birth, injury, and infectious disease from harrowing to manageable. But in the inevitable condition of aging and death, the goals of medicine seem too frequently to run counter to the interest of the human spirit. Nursing homes, preoccupied with safety, pin patients into railed beds and wheelchairs. Hospitals isolate the dying, checking for vital signs long after the goals of cure have become moot. Doctors, committed to extending life, continue to carry out devastating procedures that in the end extend suffering. Gawande, a practicing surgeon, addresses his profession's ultimate limitation, arguing that quality of life is the desired goal for patients and families. Gawande offers examples of freer, more socially fulfilling models for assisting the infirm and dependent elderly, and he explores the varieties of hospice care to demonstrate that a person's last weeks or months may be rich and dignified. Full of eye-opening research and riveting storytelling, Being Mortal asserts that medicine can comfort and enhance our experience even to the end, providing not only a good life but also a good end.

A 34-year-old man fighting for his life in the Intensive Care Unit is on an artificial respirator for over a month. Could it be that his chance of getting off the respirator is not how much his nurses know, but rather how much they care?

A 75-year-old woman is heroically saved by a major trauma center only to be discharged and fatally struck by a car while walking home from the hospital. Could a lack of compassion from the hospital staff have been a factor in her death?

Compelling new research shows that health care is in the midst of a compassion crisis.
But the pivotal question is this: Does compassion really matter?

In Compassionomics: The Revolutionary Scientific Evidence that Caring Makes a Difference, physician scientists Stephen Trzeciak and Anthony Mazzarelli uncover the eye-opening data that compassion could be a wonder drug for the 21st century.

Now, for the first time ever, a rigorous review of the science - coupled with captivating stories from the front lines of medicine - demonstrates that human connection in health care matters in astonishing ways. Never before has all the evidence been synthesized together in one place.

You will see compelling evidence that:
- Compassion has vast benefits for patients across a wide variety of conditions
- Missed opportunities for compassion can have devastating health effects
- Compassion can help reverse the cost crisis in health care
- Compassion can be an antidote for burnout among health care providers
- 40 seconds of compassion can save a life

After seeing all the evidence, the answer is crystal clear: Compassion matters...in not only meaningful but measurable ways.

#1 New York Times Bestseller 2014 NATIONAL BOOK AWARD FINALIST In her first memoir, Roz Chast brings her signature wit to the topic of aging parents. Spanning the last several years of their lives and told through four-color cartoons, family photos, and documents, and a narrative as rife with laughs as it is with tears, Chast's memoir is both comfort and comic relief for anyone experiencing the life-altering loss of elderly parents. When it came to her elderly mother and father, Roz held to the practices of denial, avoidance, and distraction. But when Elizabeth Chast climbed a ladder to locate an old souvenir from the crazy closet-with predictable results-the tools that had served Roz well through her parents' seventies, eighties, and into their early nineties could no longer be deployed. While the particulars are Chast-ian in their idiosyncrasies-an anxious father who had relied heavily on his wife for stability as he slipped into dementia and a former assistant principal mother whose overbearing personality had sidelined Roz for decades-the themes are universal- adult children accepting a parental role; aging and unstable parents leaving a family home for an institution; dealing with uncomfortable physical intimacies; managing logistics; and hiring strangers to provide the most personal care. An amazing portrait of two lives at their end and an only child coping as best she can, Can't We Talk about Something More Pleasant will show the full range of Roz Chast's talent as cartoonist and storyteller.

A book for finding purpose and strength in times of great despair, the international best-seller is still just as relevant today as when it was first published. "This is a book I reread a lot . . . it gives me hope . . . it gives me a sense of strength." --Anderson Cooper, Anderson Cooper 360/CNN This seminal book, which has been called "one of the outstanding contributions to psychological thought" by Carl Rogers and "one of the great books of our time" by Harold Kushner, has been translated into more than fifty languages and sold over sixteen million copies. "An enduring work of survival literature," according to the New York Times, Viktor Frankl's riveting account of his time in the Nazi concentration camps, and his insightful exploration of the human will to find meaning in spite of the worst adversity, has offered solace and guidance to generations of readers since it was first published in 1946. At the heart of Frankl's theory of logotherapy (from the Greek word for "meaning") is a conviction that the primary human drive is not pleasure, as Freud maintained, but rather the discovery and pursuit of what the individual finds meaningful. Today, as new generations face new challenges and an ever more complex and uncertain world, Frankl's classic work continues to inspire us all to find significance in the very act of living, in spite of all obstacles. A must-read companion to this classic work, a new, never-before-published work by Frankl entitled Yes to Life: In Spite of Everything, is now available in English.

A New Translation From The French By Marion Wiesel Night is Elie Wiesel's masterpiece, a candid, horrific, and deeply poignant autobiographical account of his survival as a teenager in the Nazi death camps. This new translation by Marion Wiesel, Elie's wife and frequent translator, presents this seminal memoir in the language and spirit truest to the author's original intent. And in a substantive new preface, Elie reflects on the enduring importance of Night and his lifelong, passionate dedication to ensuring that the world never forgets man's capacity for inhumanity to man. Night offers much more than a litany of the daily terrors, everyday perversions, and rampant sadism at Auschwitz and Buchenwald; it also eloquently addresses many of the philosophical as well as personal questions implicit in any serious consideration of what the Holocaust was, what it meant, and what its legacy is and will be.

Dr. Frankenstein dares to tamper with life and death by creating a human monster in his laboratory but his dreams of perfection are thwarted when the monster becomes an uncontrollable beast.

Charly is an adult male with a cognitive disability struggling to survive in the modern world. His frequent attempts at learning, reading, and writing prove difficult. His teacher, Miss Kinian, takes Charly to the clinic where he is observed by doctors who have Charly "race" a mouse, Algernon. Algernon is usually the winner thanks to an experiment that greatly raised his intelligence. This experiment is given to Charly, who at first does not seem affected. However, he becomes more logically advanced, eventually becoming a pure genius. Emotional and intra-personal consequences are involved when Charly learns the truth of the experiment, and struggles with whether or not the procedure was a good idea

Visions of a future full of astonishing android technology. David, an advanced android, embarks on an extraordinary adventure to discover the secret of his own identity. Believing in the story of Pinocchio, David dreams of becoming a real boy.

When a nasty neighbor tries to have her dog put to sleep, Dorothy takes her dog, Toto, and starts to run away. A tornado appears and carries her to the magical land of Oz. Wishing to return home, she begins to travel to the city of Oz where a great wizard lives. On her way she meets a Scarecrow who needs a brain, a Tin Man who wants a heart, and a Cowardly Lion who desperately needs courage. They all hope the all-mighty Wizard of Oz will help them, but they have to get to the Emerald City before the Wicked Witch of the West catches up with them.